Hello, all! Lots going on for this post! First off and most importantly, Jordyn is still seizure-free!
Jordyn's doctors and I have agreed that it is time for her to get a G-button ("feeding tube"). We have dodged this procedure a few times, but it now is the time to give-in and have it done. Not only will it allow her to get all of her food, water, and medicine in, it will limit her gag reflexes and make it 100% easier for people to watch her. Currently, someone has to be in the same room as her at all times in case she vomits. She will have the Nissen fundoplication, which creates a wrap of stomach tissue around the lower esophageal sphincter to prevent the refluxing of stomach contents into esophagus. In other words, NO MORE vomiting!! It's a very common procedure with little risk and the prognosis is almost always good! It will be a relief for Jordyn as well as everyone else here. I am very excited! She shouldn't have to endure the feeding problems she has been having. The procedure will be done on September 14th at Dell Children's Hospital and she'll be there for about 3-5 days for recovery.
October 24th is Jordyn's new Make-A-Wish date. It was pushed back when her surgery was scheduled for September. Her wish is a large flat-screen TV with all the bells and whistles. We're hanging it on the wall (fireplace, actually) so she can watch TV from her special bed. They are doing the Reveal event at our home, then there's a party to follow at GattiTown in Southpark Meadows, from 2-4pm. Anyone is welcome to come, but they are only covering a few people so you will have to pay regular buffet prices. I'd love for people to come celebrate with us!
Jordyn is also doing Water Therapy every week to help strengthen her neck muscles. She is holding up her head a lot better now! She loves to swim, and the water's resistance really makes it a more challenging workout. The facility is an hour away from us, so we're thinking about moving to Round Rock to be closer so we can make it 2x a week.
I'll try to keep everyone updated, especially during her surgery. The rest of our brood is doing great- Jaylee is 9 months old and pleasantly plump, lol. Joslyn is 26 months and blows us away with her long, complete sentences and her ability to count to 20, sing the alphabet, and sing to Black Eyed Peas and Katy Perry, haha! She loves music, go figure. John is doing great with his bands! A lot of things are happening and we'll share the great news once everything is settled!
I'm sure there's more to include with this update, but I got the 2 major pieces of news down. As always, I hope this blog update finds everyone well! Have a great Labor Day weekend and be safe!!
Kristen, John, Jordyn, Joslyn, and Jaylee
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