It has been a pretty uneventful month in terms of Jordyn's health issues, which believe me, I'm not complaining! She has been virtually seizure-free now for 3 1/2 months! She's had a few spasms here and there, but they were from sicknesses, or missed doses when she'd fall asleep before drinking her bottle with her last dose of Depakene only a couple of times. This last month, she has had one day of light spasms, and they went away completely once we gave her a few more Phenobarb pills. For once, it feels like we have complete control over her seizures and she is so happy and has been smiling so much! She wakes up smiling, and it completely makes our day!
She is still swallowing her medicine down like a big girl, and has been getting more powerful physical therapy to try to help her sit up and hold up her head more consistently. A huge percentage of Aicardi girls start doing those two milestones at 1 and a half years old, so Jordyn is a wee bit behind and we're still hoping to have her sitting up by her 2nd birthday in June.
Another bit of good news... Jordyn will have a little SISTER! I am pregnant with a healthy little girl. My doctors did a lot of ultrasounds and tests and concluded that the baby has a fully developed head/brain, and a healthy heart, and everything looks great so far! :)
I will let you know of any further updates, but let's hope and pray everything stays at this steady pace and we can have another uneventful month!
Take care, everyone- Love you all!
Kristen, John, and Jordyn (and the baby girl peanut!)
2 comments:
Great update! I don't see that little peanut enough :( She's doing so well, Kristen and I'm so happy for all three of you and your addition.
I love you.
Your big Sis, Dena
Great work.
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