Everything around here has been pretty calm and even-keeled, considering how busy we always are here. Jordyn is still seizure-free! In November, it will be a whole year since we started her on the Depakene-Phenobarb-Zonegran cocktail, so I'm thinking about throwing a little party in her honor during that month. I'll keep you posted.
This will be a busy month for her (and me!) I'm trying to order her a new indoor-chair. Those of you who have been over, you know she has been sitting in a high-chair that raises and lowers, and you also know how much she has grown out of it. I got in touch with Adorna Mobility to have them come by and take measurements for the new chair that is actually made for special-needs kiddos. That way, Joslyn can use the high-chair soon and Jordyn will be nice and comfortably supported in the new one.
I'm also wanting to order a stroller made for special-needs as well. Her wheelchair we have is nice, but it is still a little too clunky and difficult to lug around to each and every place. A special-needs stroller will be more convenient. We have a regular umbrella stroller for her, but she just slides right out of it since she has no support for her low-tone.
I'll know more about what we'll be ordering by the end of this month. She also has a few check-ups and therapy visits all month. Whew!!
Jordyn got her front tooth fixed. She had chipped it from a really bad seizure a year ago, and no dentist wanted to take her on as a patient. I found a really good dentist who has had a lot of experience with disabled kiddo's, and he patched her right up. Her smile is even more beautiful now! :D She still grinds her teeth, but not as much. We think it was from her molars coming in. Now, she just moans and whines a lot, especially when she first wakes up. We're still trying to de-code it. I hate not knowing her cues. It could be teeth pain, tummy pain, gas, who knows. But we're working on it. At least she's not having seizures. We can get through random whining and moaning.
We recently made a trip down to Corpus Christi to see John's son Jacob and Granny Annie. It was Joslyn's first long car ride, but she did pretty well. I'm attaching some sibling pics below.
Hope everyone had a great couple of months!
New readers of Jordyn's Journey, please read the first few posts to get an idea of how far little Jordyn has come!
We love you all!
Kristen, John, Jordyn, and Trouble :)
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