Jordyn has been doing well except for a 3 week period late last month where she was staying up real late being fussy and squirming around like she was extremely uncomfortable. Her muscle tone is very floppy, but she is Strong! She'd squirm right off your lap if you're not careful. After doing the usual Processes of Elimination, John and I finally came to a theory that proved to be right: Too much acid was rolling around in her belly. We've known for a long time now that she can't have too much citric acid, so we've stayed away from large amounts of that. What we didn't realize was her Depekene had another name: Valproic Acid. Since she's been on Depekene, she has been a tad more fussy until recently when she started flipping out after drinking juice or eating her Gerber stage 3 fruity foods. So now we give her Mylanta throughout the day and she's fine to have all the fruits and juice she wants. So, we don't have to take her off the wonderful, good-tasting, syrupy Depakene. :)
One more great piece of news- Jordyn has learned to swallow her other 2 seizure meds whole! We don't have to crush them up anymore and *pray* she won't puke them up! Now, I hide the whole (small) pill in a spoonful of her food and she swallows it like nothing. there's a total of 8 pills a day, so you can imagine our relief.
So, she's acid-free, puke-free, and more importantly, SEIZURE-FREE!
A great start to 2007!
So great, that we are postponing her brain surgery evaluation appointment until the end of the year.
Take care, everyone!
Kristen, John, and Jordyn (19 months old)
(oh, and the Peanut- 4 months in utero)
1 comment:
I am happy to hear 2007 is starting off well! I love the pictures of Jordyn, she is beautiful. I am glad Jordyn has started to swallow her pills, I myself am getting tired of crushing pills all the time. Are you and John deciding to find out the sex of the peanut or will it be a suprise?
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